Sunday, February 26, 2012

2nd Chance

It dawned on me last week..how serious everything was. The clots in my lungs were a big deal & I think I was a bit oblivious to it until last week. I do not know if I was in denial or what, but I didnt get it...I didnt realize I could have died!

I feel like I have been given a 2nd chance & I need to fully use it. I need to do things I have wanted to do, I need to do things on my bucket list...I need to live life to the fullest.

I feel like I have things to figure out & things I need to deal with & while that is happening...I do not know if I will be blogging much. I just need to focus on me....this is not good bye, just a pause for now...

Wednesday, February 15, 2012

MIA

Sorry Ive been MIA. This recovery has been more than I could have ever imagined!! Just when I started feeling a bit better, I took a turn for the worse. It was weird, all the sudden I was so tired I slept most of the day, this was the first problem. I kept telling my DH, I just didnt feel like I was where I should be in my recovery, but then I would remember...I lost a whole organ & 4 pints of blood..this was probably normal.

Then 2 weeks ago I got this pain in my back. I called my surgeon & he said I had probably just tweaked something & to get a massage. Well, it went away, so I didnt think about it...until it was back! Last Wednesday morning it woke me up & it was downhill from there. Again, I thought it was just something tweaked, but it kept getting worse. By Wednesday night I couldnt sleep. It didnt matter if I was on my side, back or in a recliner, I was in so much pain. I started taking my pain pills again & they would last maybe 2 hours before the back pain was back. On Thursday morning, my DH helped me up to the bedroom & went to work. I tried to walk a lot that day, thinking I just needed to be up more, but after 15 mins, I was so tired, I had to sit back down. I ended up getting a massage appointment that night, thinking that was what I needed.

By the time the DH got home, I was in tears. I had managed to get a shower, but it took everything in me. We had talked about going to the ER, but I wanted to see what the massage brought...so off we went. Let me tell you, this was the most painful massage I had EVER had. I mean, crying, screaming, lip biting. My friend (my massage lady) really thought maybe a rib was out of place from surgery because of where the pain was, but was also a bit worried because I was retaining so much water on my back.

We left there, me almost in worse shape than when I went. By the time we got home, I was feeling better...until I went to lay down. My DH went to help me lay down in bed & the pain was so bad, it would take my breath away. I tried laying flat & just couldnt breath because it hurt so bad....so off to the ER we went.

I got in quickly since I had just had surgery, which was nice. They too thought because of where the pain was & what I was explaining again something was out of place or something. But they wanted to make sure there was no internal bleeding...so cat scan of my belly...clear. By then they had given me a muscle relaxer & pain pill to help with the pain. Mind you though, the entire time I was in the ER...my back didnt bother me, go figure! They were getting ready to discharge me with back pain & at the last minute the head of the ER decided to check my lungs...just in case, for blood clots.

I remember thinking, they are nuts! I mean, I had no signs of blood clots. I told my DH "Im going to do this test, it' going to be clear & we are going home to bed!"

Yeah, that is what I thought till they came & told me that I had blood clots in BOTH lungs!! (good thing I was on the meds) I think both the DH & I were in shock...as were the employees in the ER. They kept telling me they couldnt believe it....so this bought me a 2 night stay at the hospital.

I am lucky, we caught them early. I also have no signs of clots in my legs...so they really are not sure where they came from. The clots are all because of my surgery..apparently with your spleen holding so much blood when you remove it your body is trying to deal with what to do with all the blood your spleen holds....soooo your platelet count goes up. A normal persons count is 150,000-300,000 & mine was at almost 900,000, this causes clots!

So here I am, 30 years old & on blood thinning pills & shots. My body is responding VERY well to the meds, so I am hoping this morning is my last shot & then I will be on the pill for 12 months.

So that, my friends, is why I have been MIA. I will say however, now that we found the clots & are dealing with them it was almost IMMEDIATELY that I started feeling better...feeling like me! I even made my first solo trip yesterday! Today, I make my 2nd :)

Slowly but surely...almost 4 weeks after surgery, I think I am becoming me again!

Wednesday, February 1, 2012

Part 2

So Saturday, the day after surgery is where things went down hill & bought me more time in the hospital.

My heartbeat got up over 100 beats a minute, my fever was spiking at 104. They thought maybe an infection, but once they were able to get blood from me, they saw that wasn't the case. Now, to get the blood was fun...all my veins were shot, so the only way they were able to get blood was with an ultrasound  & using it to see to get blood from an artery in my groin (fun stuff I tell ya) So when the bloodwork came back, they figured then it was just my fever that was making things go faster...so Saturday & Sunday were focused on getting my fever down. The fever went down, but my heart rate stayed up...even leaving the hospital with a heart rate over 90.

I also had the majority of my tubes removed on Sunday & got up & walking. Let me just say having a GI tube taken from your nose is NOT FUN!

By Monday I was doing well enough that I got out of the special unit & was sent general. I was not happy with this, as I no longer had my own room with the nurses I had grown to like...but I knew it was a step in the right direction.

I had a few complications while in general...where my IVs were in my hands, my hands start ballooning up to where I couldnt move them, they were retaining major water. So all IVs had to be removed & moved to my 1 in my arm.

Tuesday came around & it did not look like I would be going home...so I just assumed Iwould be chilling in general for another day or so...pleasantly around 11 my Dr came in to say all bloodwork looked good & it was time to blow the joint!

Coming home was nice, however hard...my poor DH had to take off work to wait on me 24/7. But here I am a week of being home & he has been able to go back to work. I am up & moving a bit more. I had my post op yesterday, which was my first time out of the house & wore me out!! I was out for an hour & slept for 5.

My doctor is very pleased with how I am recooping...he did say that it would take another 2-3 weeks before my energy level went up...as not only did they recycle 4 pints of my blood, which is like giving 4 pints of blood, but also the spleen is a large blood holder...so I lost that blood too. I am now cleared to walk all I want & do stairs, which is nice since Ive ben stick in our basement! Then next week, if I feel like it, I can start driving short distances.

I have a couple outings planned for this weekend, so depending on how those go, I will try to possibly go to work a few hours next week & see how that goes.

Of course my biggest concern is now & always will be getting sick. The first 2 years after loosing my spleen will be my hardest; when I can get sick the easiest. My kidney & liver will take over a lot of the function of my spleen, but it takes a couple years...in the meantime I have to stay up to date on 3 special vaccines & at any sign of a cold or anything...it's off to the dr for me. This does cause me to worry a bit about starting to be around people again...but I have to & my body will build everything back up!

So that is probably about it! Thank you again everyone for you care & concern & good thoughts during all this!
 
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